Natasha Jade

‘Attacking people with disabilities is the lowest display of power I can think of’ I recently read and shared a post on Facebook about a woman from Australia, who was parked in a disabled space with a valid blue badge and had been left a note reading ‘Did you forget your wheelchair??’. I knew some people were stupid but I just didn’t realise how much.  Justine, the woman who was left the horrible note, is only 41 years old but unfortunately suffers from M.S. As you know I suffer from M.E. which just like M.S. it is an invisible illness. It frustrates me how just because you seem fine on the outside people assume you can’t be disabled. Justine had gone shopping with her daughter with what she thought was a good day for her. I know how this can be, you’ll still be in pain, tired, etc but its the best your day will get, you’ll get all geared up to leave the house and actually go out that simple things like having a blue badge can help you so much. I use mine on good days to h...

I’m back! Yes, I said I’d be blogging a lot in Florida and yes, I said I’d blog three times a week since July but yes, I’ve massively failed thanks to my illness. As my way to say sorry I have a new layout to please your eyes! I’m still gonna be tweaking it here and there but it’s looking a hell of a lot better. I was so excited to blog about Halloween and everything but I’ve just been so ill and even worse since I got home over a week ago now, so ill I don’t think I’ve left the house since.  I’ve also been going through private messaged and emails and replying to them all. It’s so good to hear from so many people and hear your words of support. It’s also been amazing to receive messages from other people in similar situations health wise and share treatments and doctors stories.  I’m planning so many more blogs leading up to christmas hopefully full of baking, crafts, present ideas and other festive ideas. I’m already listening to Christmas songs, I even made my ...

Hello Strangers! It’s been a few months since I last blogged. I’ve been pretty ill and tired and now I’m in Florida! I’ve been in Florida since the 16th of September so exactly three weeks now. I came here with my Mum for some rest for 2 months and to get away from everything back home. My Dad’s here now for two weeks too. I’ve been pretty busy here so I wondered if there was anything anyone would like me to tell them about or tips and advice or reviews on anything?  It’s been tough recently and there’s been some big changes to my life personally. I’ve also had problems with certain people and there negative comments about my illness too. I just can’t understand why people could be so rude and want to hurt someone like that. How can you not think in your head that you wouldn’t like it if you were in this situation? It’s been so good to get away from people like that and just have a rest without feeling neighbours or strangers are thinking I’m lazy or not even i...

Hello Everyone! I was going to talk about somethings to do over Summer today but I’ll do that next week. Last night Emma Blackery posted a video about finally being diagnosed with CFS. If you don’t know who she is, Emma makes YouTube videos and has nearly 1 million subscribers.  I’ve been subscribed for a while and I’m not someone who watches everyones videos who I’m subscribed to as soon as they upload, its like a form of entertainment and something I can do when I can’t sleep. I was scrolling through and Emma’s video popped up in my subscriptions and had been uploaded only minutes ago. I saw the thumbnail with ‘CFS’ in it and then the title ‘I Have Chronic Fatigue Syndrome’. I know that more than 250,000 in the UK have CFS but I was shocked to see the video. Before reading this post I suggest you watch the video to know what I’m talking about.  Emma Blackery - I Have Chronic Fatigue Syndrome I think Emma is one of very few people that have made YouTube vid...

Hi Everyone! My Dad and brother were off down to London at the end of May for some football game (my Dad might kill me for not knowing, it was some fancy final game). Me and my Mum decided we’d tag along and go see a West End show.  We stayed in Hatfield which is where my brother went to Uni because well, its cheaper and its just as simple to get the train into London from there as it is to get the train from Huddersfield to Leeds. I suggest to anyone with a chronic illness especially that involves being tired to head to the place you’re going the night before. It was much better than tiring myself out in the car or on a train in the morning and not enjoying the rest of the day. Also it just makes sense incase your trains delayed or there’s bad traffic. This happened once going down to Watford last January, luckily Warner Bros knew about the bad accident on the motorway and let us transfer our tickets for the next morning.  LES MISERABLES The first show we saw ...

Hi, I thought every month I’d do a health update. This was the reason I started this whole blog in the first place and I want to still raise awareness of the illnesses I have even if no one really cares. I think the last time I mentioned anything about what I was up to health wise, I was having acupuncture. Yeah, this didn’t work, at all. I waited about 63 weeks, even though the letter I received said a maximum of 18 weeks. It was the most pointless thing ever. I sat on the most uncomfortable chair in a little side room with one needle in my left knee and four in my right (three of which he stuck in my left knee first for like 2 seconds?) I was then left in this room with my mum or one time my brother with my mum being away. I waited about 5 minutes before he’d come and take them out and then that was it.  After my four sessions I was reviewed and offered lidocaine infusions. Yes, if you’ve been reading my blog a while you’ll know I was already receiving the infusions ...

Hello Everyone! Sorry it’s been so long again. I’m hoping to try and schedule more blog posts and make it something more regular and constant. I’m going to put some sort of plan together and then let you know maybe next time.  I finally turned 22 on Sunday! I DON’T KNOW ABOUT YOU BUT I’M FEELING TWENTY TWOOO! Yeah that song was sung way too much on Sunday and post on every social media. Unfortunately I’ve failed to complete my list of 22 pretty simple things to do before I was 22. Instead I’ve compiled a list of 22 things that I DID do since turning 21 that I’m proud of or that were the happiest times of the year for me. I’m currently making a scrapbook of it all and then I’ll make a list of 23 things for the next year, this time I WILL complete the list as I’ll have a whole year this time.  So here are the 22 things I did in my 22nd year.  My 21st American Themed birthday party - June 2014  I LOVE America and Orlando is pretty much my second home,...

Hello Everyone!  It’s been a while but today I’m blogging about my new schedule I’m going to try my best to stick to. As you know I managed to post every day for a week in May for ME Awareness week which was great although really hard to think of what to write every day, especially when it was all focused around my illnesses which I’ve already spoke about a lot. I loved having this schedule and you knowing I was going to be posting on what day so I’ve decided to post starting today (1st July 2015) that I’ll be posting every Monday, Wednesday and Friday. Yes, there will be times I’ll miss and mess up but we all make mistakes. I’ll be posting not only health updates as that was the whole reason I started my blog but also about other things that interest me. I’ve got a few things planned coming up this month, I’ve even made an actual schedule to follow and tick off when I do post something, like a star chart for a kid when they pee on the potty.  I’d love to hear f...

Hello Everyone! After my week long blogging I’ve taken a break for a while. I’ve always been ill on top of my chronic illnesses so I’ve not bee great. I did manage to go see my cousin before she went to prom, all dressing up looking older than me! I can’t believe my prom was nearly 6 years ago and back then my cousin wasn’t even in High School.                Megan and Me @ Megan's Prom 2015           I'm the one in the red dress @ My Prom 2009 I can’t believe what has happened and how different my life is now 6 years on from Prom. I remember hating the idea of leaving school and going to college which I was so right about as I despised college. I did have so much to look forward to back then though and so many dreams and aspirations for my life. I remember thinking how seen I’d be grown up, living away from home and starting my adult life. My life couldn’t be further from that now.  A...

Hello Everyone! I made it, kind of. It’s the last day of me posting every day of the week for M.E and Fibro Awareness Week. I’m going to try post something more fun next time to counter act for all this although I’ve tried to be up beat some days. I just hope this has all helped someone or somehow and we’re all a little more educated on these chronic illnesses. I’ve talked about mental health, raising awareness, tips for bed bound, being positive, relationships and treatments. I thought I would finish with talking about how you are not your illness, your illness does not define you and how you are a lot more than that.  Yes, you may suffer from a chronic illness like M.E and Fibro or you may know someone who does but that person is a lot more than that. Just like when someone asks what you are, meaning what do you do for a living normally, people will usually say they’re a nurse or a student or accountant, and so on. I think you’re not just your job title....

Hello Everyone! Okay, okay, yes, this post is late but It’s still Saturday somewhere in the world! Its now day 6 of me blogging all week! Only one more day to go! Hopefully i’ll make it a decent one! I thought today I would talk about treatments that I’ve tried over the past 4 years. This that may have worked for me, may not for you, but things that haven’t worked for me, may work for you. It’s a lot of trial and error. This may be a long post as theres a lot of different types and I may forget a few so lets get started! Blood Tests I’ve basically had every kind possible, this is the first thing you should ask your doctor for, mainly to rule everything else out as there is no test for M.E or Fibromyalgia. Smear Tests This is again to rule anything out. This doesn’t make you a ‘slag’ or anything of the kind, even if you have only ever had one boyfriend you don’t know how faithful or clean they are really. You might trust them and thats great but the fact is, you d...