Skip to main content

Health Update - July

Hi,

I thought every month I’d do a health update. This was the reason I started this whole blog in the first place and I want to still raise awareness of the illnesses I have even if no one really cares.

I think the last time I mentioned anything about what I was up to health wise, I was having acupuncture. Yeah, this didn’t work, at all. I waited about 63 weeks, even though the letter I received said a maximum of 18 weeks. It was the most pointless thing ever. I sat on the most uncomfortable chair in a little side room with one needle in my left knee and four in my right (three of which he stuck in my left knee first for like 2 seconds?) I was then left in this room with my mum or one time my brother with my mum being away. I waited about 5 minutes before he’d come and take them out and then that was it. 

After my four sessions I was reviewed and offered lidocaine infusions. Yes, if you’ve been reading my blog a while you’ll know I was already receiving the infusions but had heard nothing for months for another appointment. This doctor was the one who even gave me the infusions in the first place. He also sat there with my notes in front of him which if he had read them he would have known I already had them. This was all he could seem to come up with again but told me I’d have to wait another 5 months for my next one. I was supposed to be having them every two months now and my last one was November. My mum and I left deflated and not in the mood for an argument leaving it for another day and realising we probably wouldn't get anywhere anyway. 

I’m currently waiting to see my gynaecologist who I was supposed to see 6-8 weeks after my surgery but it will be 6 months since my surgery when I next see her next week so my GP’s had to complain about that. It’s just a massive mess and my illness isn’t taken seriously at all. You, doctors, family, friends might not take it seriously because its not a ‘life threatening illness’ but i’m losing life right now. I feel like Sirius Black in the Prisoner of Azkaban every time I see someone ‘I did my waiting four years of it!!’ (yes, i know he says 12 but fortunately i’m not there, yet) 

I’m pretty much bed bound again apart from the odd birthday do, meal out or trip to the cinema. People keep asking me what I do, what uni i’m at, what I’m gonna do when I’m better. I keep getting the ‘You’re looking well’ ‘You look a lot better’ ‘Are you better yet?’ It’s amazing what a bit of fake tan and make up does to you! It’s draining and I think it’s contributed to feeling worse lately. I’m tired of being tired. I’m sick of being sick. 

I wanted my blog to be a positive place, a place where I could explain and educate people about my illnesses and it’s just turned into a negative mess. There is nothing positive about these illnesses, not in my case anyway. I’ve tried to be positive and believe that people understand but they really don’t. You think you’re finally getting through to people and then they’ll just say one little stupid thing. You’ll have one good positive day and get something done but then the rest of the week is just, just pointless and wasted in bed. It’s dark, lonely and suck the god damn life out of you. 

I’m sorry this hasn’t ended on a high note and it’s not very inspiring or anything but its the truth. 
Hopefully next week will be better.
Take care, I’ll see you Monday.
Natasha

xoxo

Popular posts from this blog

When I Eventually Wake Up

I’ve lost track of what day of the week we’re on, what month or season. I’m dripping in sweat, it feels like Summer, but then I’m shivering, so is it Winter? I realise its still daytime from the stream of light peaking through sides of the blinds. The beauty of a sunrise or sunset taken away by the burning in my eyes. The birds singing outside that sounds like nails on a chalkboard. Every car driving past my window, the mumbling through my floorboards of my family watching TV, the postman at the door, the gardener mowing the lawn, all irritating me like an itch that you just can’t scratch.
My chest feels so heavy that I can’t lift it off the mattress, my shoulders pinned down by the invisible weights. My heads pounding and burning like any other young adult would after a long weekend, only mines not self inflicted by over priced cocktails and 99p shots. I lay their in pain from my toes to the top of my head, my legs restless, unable to find a comfortable position even in my cloud like …

30 Years of Mr and Mrs Spychalski

27.06.1987 - Mum and Dad's Wedding Day.
On the 27th of June 1987 was Pamela Robinson and Richard Spychalski's wedding day, soon to be my Mum and Dad. I wasn’t around 30 years ago. People still say it was the best wedding they’d ever been to, that's probably because of the free bottle of vodka they placed on every table.
Mum and Dad lets face it, the six years of marriage without me in it were pretty dull. I must have been the best anniversary gift you’ve ever received the day after your six year anniversary, I guess Dad was pleased he could save money on a gift that year, until he found out I was a girl and realised the small amount of money on a gift for mum is nothing compared to the money spent on a daughter for the rest of his life. You're welcome Dad.
If I’m honest I don’t know how they haven’t both packed up and moved away from me, together or not, although they are on holiday together this week, without me.
My Mum will be up all day and night if she could, researchi…

My Hero, My Idol, My Great Grandma

Today would have been my Great Grandmas 109th birthday. A lot of people probably never met any of their Great Grandparents. I was lucky to have had 18 years with one.
My Great Grandma, was the mother of my Grandma on my mum’s side. Her name was Mary King, but most people knew her as Molly. She past away when she was 103 and a week. That week is very important to me. I didn't even know it would be her last week with us. As a family it wasn't spent worried and preparing ourselves for her final few days, I didn’t even see her that week. 
The last time I saw my Great Grandma was on her 103rd birthday, opening her presents and cards in a care home she’d only spent the last 3 weeks of her life in because until those last three weeks, she lived in the same home she’d lived in for over 80 years.
My 18th birthday was five days after her 103rd. I’d finished college, planned a party for the weekend, I wanted to invite her, although I don’t think a party full of drunk 18 year olds was exactl…