Emma Blackery's CFS Video

Hello Everyone!

I was going to talk about somethings to do over Summer today but I’ll do that next week. Last night Emma Blackery posted a video about finally being diagnosed with CFS. If you don’t know who she is, Emma makes YouTube videos and has nearly 1 million subscribers.

I’ve been subscribed for a while and I’m not someone who watches everyones videos who I’m subscribed to as soon as they upload, its like a form of entertainment and something I can do when I can’t sleep. I was scrolling through and Emma’s video popped up in my subscriptions and had been uploaded only minutes ago. I saw the thumbnail with ‘CFS’ in it and then the title ‘I Have Chronic Fatigue Syndrome’. I know that more than 250,000 in the UK have CFS but I was shocked to see the video.

Before reading this post I suggest you watch the video to know what I’m talking about.

Emma Blackery - I Have Chronic Fatigue Syndrome

I think Emma is one of very few people that have made YouTube videos about CFS that just gets it right. I love how she comes across and well she explains CFS, its not boring like most people and even though the video is over 20 minutes long it didn’t feel it. I’ve found over the past 4 years not one video that really kept me listening about CFS or Fibromyalgia and thats why I wanted to make my own but because of how tired I am, still haven’t made one. If even I, someone who has the illness can’t stay tuned then what hope is it to keep people who don't have it engaged.

Even though Emma explains that she was only just diagnosed that day she tells her story and gives information about CFS really well. She explains her struggles with the doctors and how getting them to take her seriously and diagnose her has taken 6 years. Whilst recording she goes on to say how she wouldn’t normally make a video that day because her symptoms are bad and would just write the day off but I’m glad she made it even though she wasn’t feeling great. It showed some of the symptoms like how tired she was and brain fog or losing her train of thought.

I’m not glad Emma has CFS but I’m glad she has this big number of subscribers that’ll watch this and it’ll help spread awareness of this horrible, horrible syndrome. I’m not gonna ramble on because you might as well just watch the video. Please watch it though, i think it explains CFS pretty well compared to others.

Just watch it!

Let me know what you think of it.

Take care and I’ll see you soon!

Natasha Jade

xoxo

Comments

Doctors, Hospitals and No Success.

I decided I think I should explain exactly what I have been through with the doctors and hospitals including treatments. As I explained in my post 'The Past 3 Years...' this all started just over 3 years ago now. I started having flu like symptoms just after Christmas 2010 and after seeing the doctors every week I was finally tested about 5 weeks later for Glandular Fever, by this time the doctor said the virus would probably have left my system so my blood tests all came back fine. Unfortunately there was never a definite answer for this mystery illness that started these long, long years. After finally going back to college and completing my A Levels and having my 18th birthday in June 2011 I went back to the doctors after the cold, blocked nose and coughing symptoms had gone but left me still aching all over, mainly in my legs. At the beginning of August 2011 I went to the doctors AGAIN and I was sent to the 'GUM' department of the Princess Royal Hospital to be ...

My week of HELL.

Hello again! First of all I want to say thank you to any comments, messages and emails I have received since I started this blog. I didn’t think anyone would even read it. It means a lot to me the amount of support there is and that people understand M.E/CFS and Fibromyalgia even that little bit more. So first I’ll talk about the Lidocaine Infusion I had two weeks ago. Basically I sit in a chair and they hook me up to all the machines that check your heart beat etc. Then they take your blood pressure and weigh you to check everything is okay for you to go ahead with it. Then they put the cannula into your hand and add the drip which slowly for an hour and a half puts the anaesthetic into you. Then they take your blood pressure every 10 minutes whilst you just sit there (bored). After the infusion I didn’t feel any different apart from feeling dizzy. The next day I did think the pain in my arms was better which was good but my legs just seemed to get worse and worse. ...

30 Years of Mr and Mrs Spychalski

27.06.1987 - Mum and Dad's Wedding Day. On the 27th of June 1987 was Pamela Robinson and Richard Spychalski's wedding day, soon to be my Mum and Dad. I wasn’t around 30 years ago. People still say it was the best wedding they’d ever been to, that's probably because of the free bottle of vodka they placed on every table. Mum and Dad lets face it, the six years of marriage without me in it were pretty dull. I must have been the best anniversary gift you’ve ever received the day after your six year anniversary, I guess Dad was pleased he could save money on a gift that year, until he found out I was a girl and realised the small amount of money on a gift for mum is nothing compared to the money spent on a daughter for the rest of his life. You're welcome Dad. If I’m honest I don’t know how they haven’t both packed up and moved away from me, together or not, although they are on holiday together this week, without me. My Mum will be up all day and night...

Natasha Jade

Search This Blog