Skip to main content

The Little Things

Hello Everyone!

I’m half way through my blog for ME/CFS and Fibromyalgia Awareness Week. 

It’s hard to keep your mood positive when you don’t see much of an improvement daily. There’s no quick fix or known treatment and its easy to fall back in depression or feel negative about most things. 

There’s always something positive in each day so I decided yesterday I’d write down a few things that I did that were positive, even the smallest of things. Something that might not be a big deal to others could be to you.

I got up and out of bed and managed to get showered and even wash my hair. 
I dressed up, curled my hair and put on some make up to look half decent.
I went out for my cousins birthday for a meal with my family and managed not to fall asleep in my food.
I walked from the car to the restaurant without needing to stop and rest.
I managed to eat a starter and a main meal.
I found a new cocktail which I loved and was even called ‘Luna Lovegood’.
I laughed so much at us all playing ‘Lady Diana’ in the car on the way home. (Watch Peter Kay’s Car Share if you don’t know what it is)
I was in bed for 10:30pm and took all my medication.

There not the biggest of achievements but at least I left my bed and did something. If you’re having a bad day try write down a few small things you’ve done and you’ll see that there is something worth going through this pain and fatigue for. 

Sorry this is only short, but after yesterday, I’m knackered. 
Take care and I’ll speak to you tomorrow.



Popular posts from this blog

When I Eventually Wake Up

I’ve lost track of what day of the week we’re on, what month or season. I’m dripping in sweat, it feels like Summer, but then I’m shivering, so is it Winter? I realise its still daytime from the stream of light peaking through sides of the blinds. The beauty of a sunrise or sunset taken away by the burning in my eyes. The birds singing outside that sounds like nails on a chalkboard. Every car driving past my window, the mumbling through my floorboards of my family watching TV, the postman at the door, the gardener mowing the lawn, all irritating me like an itch that you just can’t scratch.
My chest feels so heavy that I can’t lift it off the mattress, my shoulders pinned down by the invisible weights. My heads pounding and burning like any other young adult would after a long weekend, only mines not self inflicted by over priced cocktails and 99p shots. I lay their in pain from my toes to the top of my head, my legs restless, unable to find a comfortable position even in my cloud like …

30 Years of Mr and Mrs Spychalski

27.06.1987 - Mum and Dad's Wedding Day.
On the 27th of June 1987 was Pamela Robinson and Richard Spychalski's wedding day, soon to be my Mum and Dad. I wasn’t around 30 years ago. People still say it was the best wedding they’d ever been to, that's probably because of the free bottle of vodka they placed on every table.
Mum and Dad lets face it, the six years of marriage without me in it were pretty dull. I must have been the best anniversary gift you’ve ever received the day after your six year anniversary, I guess Dad was pleased he could save money on a gift that year, until he found out I was a girl and realised the small amount of money on a gift for mum is nothing compared to the money spent on a daughter for the rest of his life. You're welcome Dad.
If I’m honest I don’t know how they haven’t both packed up and moved away from me, together or not, although they are on holiday together this week, without me.
My Mum will be up all day and night if she could, researchi…

My Hero, My Idol, My Great Grandma

Today would have been my Great Grandmas 109th birthday. A lot of people probably never met any of their Great Grandparents. I was lucky to have had 18 years with one.
My Great Grandma, was the mother of my Grandma on my mum’s side. Her name was Mary King, but most people knew her as Molly. She past away when she was 103 and a week. That week is very important to me. I didn't even know it would be her last week with us. As a family it wasn't spent worried and preparing ourselves for her final few days, I didn’t even see her that week. 
The last time I saw my Great Grandma was on her 103rd birthday, opening her presents and cards in a care home she’d only spent the last 3 weeks of her life in because until those last three weeks, she lived in the same home she’d lived in for over 80 years.
My 18th birthday was five days after her 103rd. I’d finished college, planned a party for the weekend, I wanted to invite her, although I don’t think a party full of drunk 18 year olds was exactl…