Natasha Jade

I haven’t posted for a while, I’m sorry to anyone who’s still interested. I’ve actually been busy for once since my last post. I've been away on holiday for two weeks to Florida which has become my second home over the years. The two weeks were supposedly for some rest but we couldn’t help but go to some of the theme parks and water parks. I ended up coming home ill after the two weeks and had to make another trip into A&E a week later as I wasn't getting any better and you all must know how hard it is to get appointments with GP’s. Me and my mum made our way to A&E around 5am and after being seen by a really lovely team and so quickly too I was sent home being told they thought it was a virus but luckily nothing major wrong with me (not like I needed anything else on top of all this). After this virus finally left my system it was my 21 st birthday which I stupidly decided to have a party (American themed of course, us Spychalski’s don’t throw ordinary partie...

Hello to whoever may be reading this, if anyone still is. Basically since my last blog I have been hiding away in my bedroom, lights off, curtains and blinds shut. I have worked out this doesn’t shut out the world, my brother playing music, dad watching football downstairs or my mum from trying to wake you up. But it has left me a lot of time to think. I went to the doctors (again) as I had seen so many doctors recently that I wasn’t sure which medication I was meant to be taking. I have asked for a full copy of all my medical records as I’m not aware of really what they’re putting about me in them and after the amount of times I’ve been I’m kind of hoping for a loophole or something they’ve missed. They gave me a summary for now which I already found several bits of bullshit so we shall see when they send the whole records. But they gave me an account of my blood tests and nothing but my Vitamin D is wrong which irritated me and got me down. This illness is hard enough when t...

Helloooooo  This was meant to be a positive blog and I’m sorry it’s so negative but I don’t want to lie and say everything’s fine now. I’m gonna start with the night of 18 th April because until then my legs weren’t as bad since my last blog but they still hurt. As always the pain is there but I felt distracted this week, until Friday the 18 th . My brother had two friends up from Uni staying over and everyone was in bed. I didn’t feel tired so stayed downstairs watching TV until I fell asleep. I woke up at about 2am and decided to go to bed, so I managed to turn everything off and even put the house alarm on. I got what my mum thinks was at least half way up the stairs judging from where my phone was that my legs gave way and I fell down the stairs. I didn’t dare move in case something bad had happened as I could feel more pain than ever but I knew I had hit my back and head. I tried to feel for my phone in my pocket as I had remembered that I put it there but I wasn...

Hello again! First of all I want to say thank you to any comments, messages and emails I have received since I started this blog. I didn’t think anyone would even read it. It means a lot to me the amount of support there is and that people understand M.E/CFS and Fibromyalgia even that little bit more. So first I’ll talk about the Lidocaine Infusion I had two weeks ago. Basically I sit in a chair and they hook me up to all the machines that check your heart beat etc. Then they take your blood pressure and weigh you to check everything is okay for you to go ahead with it. Then they put the cannula into your hand and add the drip which slowly for an hour and a half puts the anaesthetic into you. Then they take your blood pressure every 10 minutes whilst you just sit there (bored). After the infusion I didn’t feel any different apart from feeling dizzy. The next day I did think the pain in my arms was better which was good but my legs just seemed to get worse and worse. ...

Hello  I’m sorry it’s taken me so long to write another post but I’ve been so busy for once as my Dad turned 50 last week and my Mum and Dad had a joint birthday party which I have been helping to organise, also I decided it would be a good idea to make my Dad a scrapbook of his whole life (30 years of which I wasn’t even there) and I’m still not finished. Anyway, someone asked me about being bullied and how that means it has affected me with my M.E and Fibromyalgia. As I have said in previous blogs, there is no known cause for M.E or Fibromyalgia but one theory is that besides a virus, which I did have, is that it could be down to stress and anxiety which doctors and specialists believe is due to me being bullied throughout the whole of my school life. So, basically, I don’t remember a year since Year 1 – Year 13(last year of college) in which I wasn’t bullied. There were never the same people and always picked on something different every time, I’m starting to wonder i...

I decided I think I should explain exactly what I have been through with the doctors and hospitals including treatments. As I explained in my post 'The Past 3 Years...' this all started just over 3 years ago now. I started having flu like symptoms just after Christmas 2010 and after seeing the doctors every week I was finally tested about 5 weeks later for Glandular Fever, by this time the doctor said the virus would probably have left my system so my blood tests all came back fine. Unfortunately there was never a definite answer for this mystery illness that started these long, long years. After finally going back to college and completing my A Levels and having my 18th birthday in June 2011 I went back to the doctors after the cold, blocked nose and coughing symptoms had gone but left me still aching all over, mainly in my legs.  At the beginning of August 2011 I went to the doctors AGAIN and I was sent to the 'GUM' department of the Princess Royal Hospital to be ...

So when I meet up with friends or see people I haven't seen in a while everyone asks each other "How's uni going?" or "What are you doing at the moment?" and most people mention there new job or apprenticeship. For me its another embarrassing moment attempting the long process of trying to explain what this frustrating illness is. M.E or Myalgia Encephalomyelitis also known as CFS or Chronic Fatigue Syndrome  Myalgia means muscle pain and Encephalomyelitis means inflammation of the brain and spinal cord. There is no known cause for M.E/CFS but people believe that it could be caused by an in balance of hormones, problems with the immune system, a viral infection (in my case Glandular Fever) or psychiatric problems like stress or a trauma.  Symptoms of M.E/CFS - Fatigue is the main symptom physical and mental exhaustion.  - Muscle Pain - Joint Pain - Severe Headaches - Brain Fog - Stomach Pain - Sore Throat  -...