Skip to main content

What is it?


So when I meet up with friends or see people I haven't seen in a while everyone asks each other "How's uni going?" or "What are you doing at the moment?" and most people mention there new job or apprenticeship. For me its another embarrassing moment attempting the long process of trying to explain what this frustrating illness is.

M.E or Myalgia Encephalomyelitis also known as CFS or Chronic Fatigue Syndrome 

Myalgia means muscle pain and Encephalomyelitis means inflammation of the brain and spinal cord. There is no known cause for M.E/CFS but people believe that it could be caused by an in balance of hormones, problems with the immune system, a viral infection (in my case Glandular Fever) or psychiatric problems like stress or a trauma. 

Symptoms of M.E/CFS

- Fatigue is the main symptom physical and mental exhaustion. 
- Muscle Pain
- Joint Pain
- Severe Headaches
- Brain Fog
- Stomach Pain
- Sore Throat 
- Intolerance to light, sound, alcohol and certain foods
- Depression
- Panic Attacks

Fibromyalgia

Fibromyalgia is a long-term condition that causes pain all over the body. There is also no known cause of Fibromyalgia. Fibro also has similar symptoms to M.E/CFS but is mainly diagnosed by the pain but including the M.E/CFS symptoms it also includes;

- Restless Legs
- Tinnitus 
- Tingling and Numbing 
- Extreme Sensitivity 

For both M.E and Fibromyalgia I personally have found treatment frustrating. You have to find what works for you and to me it feels like nothing works and if anything my condition is worse than 3 years ago now. I don't want to sound negative as it is what works for you and what didn't work for me could work for you. I'll post next time about what treatments I have tried and how they did or didn't work for me. If you have any ideas of what I can try please leave a comment.

Hopefully some friends or people that have asked me what M.E and Fibro is can read this and it better explains what M.E and Fibro is. I hope people can understand why I found it hard to continue at uni and can't hold down a full time job. People that do know me will know I don't just sit at home all day every day, I do have my own business hand making products and I am signed to an agency to hopefully persue an acting career both of which suit me at the moment because I can do either job when I feel up to it. 

I don't want people to feel sorry for me as I'm not the only person to suffer from this but imagine on top of having all those symptoms you have to complete your uni dissertation or report for work?


Natasha xo


Popular posts from this blog

When I Eventually Wake Up

I’ve lost track of what day of the week we’re on, what month or season. I’m dripping in sweat, it feels like Summer, but then I’m shivering, so is it Winter? I realise its still daytime from the stream of light peaking through sides of the blinds. The beauty of a sunrise or sunset taken away by the burning in my eyes. The birds singing outside that sounds like nails on a chalkboard. Every car driving past my window, the mumbling through my floorboards of my family watching TV, the postman at the door, the gardener mowing the lawn, all irritating me like an itch that you just can’t scratch.
My chest feels so heavy that I can’t lift it off the mattress, my shoulders pinned down by the invisible weights. My heads pounding and burning like any other young adult would after a long weekend, only mines not self inflicted by over priced cocktails and 99p shots. I lay their in pain from my toes to the top of my head, my legs restless, unable to find a comfortable position even in my cloud like …

30 Years of Mr and Mrs Spychalski

27.06.1987 - Mum and Dad's Wedding Day.
On the 27th of June 1987 was Pamela Robinson and Richard Spychalski's wedding day, soon to be my Mum and Dad. I wasn’t around 30 years ago. People still say it was the best wedding they’d ever been to, that's probably because of the free bottle of vodka they placed on every table.
Mum and Dad lets face it, the six years of marriage without me in it were pretty dull. I must have been the best anniversary gift you’ve ever received the day after your six year anniversary, I guess Dad was pleased he could save money on a gift that year, until he found out I was a girl and realised the small amount of money on a gift for mum is nothing compared to the money spent on a daughter for the rest of his life. You're welcome Dad.
If I’m honest I don’t know how they haven’t both packed up and moved away from me, together or not, although they are on holiday together this week, without me.
My Mum will be up all day and night if she could, researchi…

My Hero, My Idol, My Great Grandma

Today would have been my Great Grandmas 109th birthday. A lot of people probably never met any of their Great Grandparents. I was lucky to have had 18 years with one.
My Great Grandma, was the mother of my Grandma on my mum’s side. Her name was Mary King, but most people knew her as Molly. She past away when she was 103 and a week. That week is very important to me. I didn't even know it would be her last week with us. As a family it wasn't spent worried and preparing ourselves for her final few days, I didn’t even see her that week. 
The last time I saw my Great Grandma was on her 103rd birthday, opening her presents and cards in a care home she’d only spent the last 3 weeks of her life in because until those last three weeks, she lived in the same home she’d lived in for over 80 years.
My 18th birthday was five days after her 103rd. I’d finished college, planned a party for the weekend, I wanted to invite her, although I don’t think a party full of drunk 18 year olds was exactl…